How is this for a kick in the ass. I will have to have my friend who is a dr send in a formal request for this document though I do believe this copy to be legit, I want to have no doubt what so ever. What is a real kick in the ass is that this is an internal document which means that I think most doctors would not know about it because this information does not come with the medication. Can you beleive this?
I'm feeling a little more emotionaly stable right now. It seems to fade in and out. I really do thank you for you words of support to me.
Lefty, trust me, no matter what happens I will always love my wife. I used to be a different person and somehow through her love she helped me to become a better person.
mga, what is scary to me is that from what I have read so far, either she will get better on her own, or she will not get better and possibly get worse. From what I have found, there is no remedy. When I come across that information again if you are interested I will post it.
Once again, thanks guys. No matter what we will make it, but I am terrified that this could be a rough ride, though there is still hope.
As far as her improvement which at this moment is giving me hope that she will be one of the people that recover, she is able to go a short distance now using a walker. Her rignt leg has to kind of drag, but at least she is up and moving.
I started a firestorm in the hospital today. Lol, I dont think that they like me very much:)
The hospitalist came into the room to tell my wife that the last test came back clear, which from what I have read I knew that it would. I took him out into the hallway and had a little chat with him. I gave him the information that I have found so far and told him to look at it. He tried to deny it again but I wasnt going for it this time. This IS what the problem is. I know it. I think he left a bit shaken.
Awhile later he came back up to speak to my wife about another test, and all that he said was that it was clear and then walked out. He didnt even look at me, he avoided looking at me to the point that my wife commented on it. I still have not told her everything because I dont want her to worry anymore than she already is, but I did tell her a little about this drug because I wanted her to know that she is not losing her mind.
I waited all day for the damn Dr. who did her first surgery (distecomy) to show. At around 5:00 my wife was really really tired, so I decided to head out to drop off her mother who was with us all day and give her a chance to get some sleep. Unfortunatly, as I was walking in the door, the phone was ringing. Dont it figure, after I left he walked in. I wanted to give him the informaton also and I wanted to make sure that he understood that this was what the problem was.
Anyway, he told her that he did not know what was going on, they just couldnt figure it out, so he was going to talk to the hospitalist and have her released. Well, get this, he went to the hospitalist, (who I had a little talking too) and no one ever got back to her. The nurses even paged both the hospitalist and the surgen and NEITHER ONE CAME BACK. I'm figuring that the hospitalist gave him my message, so I guess that I did not have to be there to do that after all.
I know that my wife wants to come home and I'm sure that she is disapointed that she didnt. At first I was kind of against her coming home because I wanted to know what was going on, now that I do know what is going on I want her home badly. They cant do anything for her there. If she recovers she recovers, that is about it.
Ok. I will keep updating this if you all dont mind. Also, I would like this here to remind everyone who is a regular here and any of the lurkers who are out there and read this to think very carfully before they ever get this procedure done. Chances are you will be ok, but there is a big enough chance that you will not be ok and have such devestating consequenses that would make your life a hell on earth. Of course they wont tell you that, they will tell you the same thing that they told us.